Asking For Help

Things have been troublesome for me. My relationship of 4 years has ended, and I’m still heartbroken over that fact. It’s only been a couple days, and so the feelings are still very raw. It’s difficult to have 4 years of good memories in your head, only to be trumped by the memory of one incident: the break up.

I’m okay with having to move forward. I mean, I’ve been through a lot worse things in my life than a breakup, and have had my heart broken on the same level once before. I’m used to the pain. I’m used to the random crying that hits you when you hear a song that reminds you of everything, or see a couple, or hear about people and their love, or see all the pictures we have. I’m used to the constant feelings of “wow, this is all your fault” because I’m used to things getting ruined because of my mental health. And that’s essentially what all this boils down to.

I still have my cat. I love her, and I will forever love her. And I thank him for buying her for me those 2 years ago, she’s been a great addition to my life. So that’s one thing to be thankful for.

On top of that, the program I work for is also closing in December. I feel I am no longer welcome in this town by way of the universe, and that because both my job and relationship are essentially over at the same time, it’s a sign that it’s time to move on to bigger and better things.

I plan to move down to Los Angeles where peer support jobs are rampant in certain areas, and where I can really use my creative talent: my writing, my photography. I want to be able to blossom in this crazy life, and I’m sick of being stifled and stagnant. All of this stress is really kicking up my mental health issues, and so is not having the money to even pay for my prescriptions right now.

I started a GoFundMe. Hear me out: I hate taking money from people. I hate taking offers from people. I hate doing anything that requires me to beg. But I am in a situation where I can’t just up and leave town and not risk being homeless. I can’t stay in town and not risk being homeless. Again. I’m trying to avoid that. Again.

I would use the funds strictly for moving expenses and nothing more. That means the U-Haul to get my stuff down there, the deposit and first months rent on a place ( a room for rent, of course), and food along the way. I’m asking for 2k. Not too much, not too little.

If you know anyone who is willing to donate, that would be amazing. The link is here. I’m just a young 23 year old trying to make a new start in a world that has beat me down from the beginning. And I’m not trying to act helpless. I’m not even on disability, although with my diagnoses I could qualify. But I want to do things on my own, prove to myself and the world that I can be who I need to be without second guessing myself or degrading myself.

I am just in need of a little help.

I’ve been apart of this wordpress community for three years now, and have been thankful to every single person who has ever liked or commented on this blog. And now I’m finally reaching out to every single one of you and asking for just a bit of help. You don’t have to donate, that’s not what I’m asking. I’m asking for you to share the link on Facebook, on Twitter, on LinkedIn, whatever. I only have so much of a following, and could use more help in that department.

If you do donate, thank you, thank you. Every little bit helps.

Now, I’m going to try and get ready for my day, as difficult as that’s becoming.

Thank you.

Who’s In Your Driver’s Seat?

It feels good to be back. And by being back I mean reading articles that really have meaning to them, reading tweets that aren’t just about the memearific Kim K shoot. It feels good to be reading and reporting on articles that support and disapprove of my stance. I read one this morning called “The Corruption of Evidence Based Medicine–Killing for Profit” by a Doctor Jason Fung, a Nephrologist. You can read it here.

I mostly report on the corruption within the medicine of psychiatry, but the same happens in the sector of physical health.

This isn’t surprising. As I’ve said many times, medicine is a business. It shouldn’t be, but it is. It’s the same sort of business Tobacco is: it feeds off of people’s weaknesses. That’s not to say at least medicine has the quality of “helping” some people. Without my dad’s blood pressure medicine, his pressure rises into the 200’s easy. They’ve already seen he’s had a few mini strokes none of us knew about. So I’m not here to say we need to abolish the current system. I’m here saying we need to take a closer look.

It’s not your physicians necessarily that are in on this, it’s the researchers, the pharmaceutical companies, and if you live in the United States, the insurance companies. It’s a shame the only research that gets published is the research that very obviously supports the pharmaceutical or the procedure.

Fung quotes Doctor Marcia Angell when she stated the mean truth:

“It is simply no longer possible to believe much of the clinical research that is published, or to reply on the judgement of trusted physicians or authoritative medical guidelines. I take no pleasure in this conclusion, which I reached slowly and reluctantly over my two decades as an editor.”

It didn’t take me two decades to reach that conclusion, and I wasn’t reluctant about it. As soon as I read anti-psychotics were given to three year old’s for tantrums, I knew something was screwy. It doesn’t take a rocket scientists to see the profit within that.

Some psychiatrists and physicians aren’t even aware of what they’re doing half the time. My last psychiatrist wanted to raise me to 15mg of Abilify even though the research says anything about 10mg shows no real efficacy. And yet, how high up do they go in miligrams? 30. Think about that. 2mg of Abilify is 939 dollars a prescription without insurance. Abilify is one of the top-selling Antipsychotics in the U.S. Think about it. It took me digging through a lot of papers and research to even find the truth about the efficacy.

Soon all the rage will be these injections. The easiest way to trap someone on a medication is to give them one they can’t refuse. They are, of course, for the more “difficult” patients. So not only are you a patient with no rights, you’re also a patient with no rights who knows they have no rights, so you stand up to that, and that makes you difficult. Or, your experience of psychosis hasn’t been properly approached yet, and therefore you are left to sizzle in your own mind with only the fleeting hope an injection will change things. Maybe for some it does. But at what cost?

Fung makes a good point: “Evidence based medicine is completely worthless if the evidence base is false or corrupted.” 

Doctor Relman makes another good point:

“The medical profession is being bought by the pharmaceutical industry, not only in terms of the practice of medicine, but also in terms of teaching and research. The academic institutions of this country are allowing themselves to be the paid agents of the pharmaceutical industry. I think it’s disgraceful.”

It’s very disgraceful. This is why I have such a strong moral stance against taking medication, this is why I hate to admit that sometimes, yes, a low dosage of a medication does even out my mood. Yes, a low dosage of a medication does help me better understand and better dictate what thoughts I listen to and what thoughts I don’t.

It’s when doctors push up your milligrams because your voices haven’t gone that is the problem. Maybe the voices will never go away: if you haven’t accepted or made peace with that, that’s not a problem medication will solve. Maybe the delusional thoughts will always be there. The depression. The anxiety. If you haven’t accepted any of that, again, that’s not a problem medication will solve. 

It’s also not a problem to be solved. It’s an experience to learn from. It’s an experience to learn how to experience it in a way where you can still live the life you want to. Everyone has some kind of struggle that holds them back at some point in life. You are no different. And to sit back and say “Well, this is my ‘sickness’, I guess I’m doomed to a life of nothingness” is called giving up. That’s not acceptance.

That’s one thing that I struggle with in accepting this “mental health awareness” campaign everyone has going. They’re making awareness for the sickness, the illness, for this idea of helplessness because “your mental illness will never go away”. We should be empowering each other. We should be introducing each other to new perspectives, new ways of hearing voices, new ways of interpreting delusions, new ways of tackling anxiety, new ways of coping with depressions, new ways of experiencing mood swings. The only way we will avoid the corruption of ourselves is to keep ourselves. We can’t lose ourselves within this idea of being ill, of being sick, of needing this, needing that, being disabled.

And that’s today’s Mental Truth.

 

Reaching Contentment

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Where are you in your journey?

I feel like I spent a lot of time confused. If any of you are reading from the past, you’ll remember all the posts I made while I was in classes, about annoying girls flipping their hair right in my face and Calculus tests and writing workshops. You might even remember that I started dropping classes like flies. Now I’m trying to work on getting back into my classes so I can finish this puny fucking degree.

I’ve always liked school, and I’ve always been rather smart. There were some things I had to work at harder than others, but a lot of that was chalked up to my anxiety and inability to raise my hand and ask for clarification when I needed it–everyone needs clarification sometimes, I don’t care how smart you are. And if you are unable to get that small little aide, you start falling behind. And that’s exactly what I did. That’s exactly what I’m still doing.

Where am I in my journey–I’m not quite sure. I still feel a little lost and a little confused, but I feel like the directions are becoming clearer. I feel like I’m not longer standing at a fifty pronged fork in the road, I feel like I’ve narrowed it down to about 4 prongs.

I will be attending some classes again this semester, but I feel more ready for them, more so than I have in the last couple years. It’s going to feel a little strange being back in the classroom and as I watch my cat jump atop the fridge to get atop the kitchen cabinets, I realize that I have to do the same thing she does: calculate how far I can really leap, and what my limits are. I can’t just be jumping aimlessly. I need to jump with a purpose. That’s the only way to keep what little motivation I have left steady.

Life is such a great learning experience, I’ve learned to appreciate so much over the last three years. I’ve learned to appreciate myself most of all, and the shit I’ve put up with.

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I think what has made this experience one of the best experiences is that I’ve really learned how to feel my feelings. I was talking the other day with someone about how content I was, and how that feeling has been harder to learn to accept than the negative emotions. I don’t know what to do with myself when I’m content. I don’t have to fight with my brain, I don’t have to practice breathing because I’m not anxious, I’m not hearing voices or seeing demons, I’m not suicidal, I’m just kind of sitting in my house content with where I am in the moment. And that’s a new feeling. As with all new feelings, they take some time getting used to.

My intention was to pinpoint ways to become content like this, but I’m not sure if I can put it into steps or even words. I’m still expanding my support force, both with peers and in the professional world, and I’ve dropped a lot of pride. I’m still morally against taking psychiatric medication, but I came to the realization that as a temporary tool they can be useful. I’ve decided to give it a year or two, see how much progress I can make, see what skills I can learn to curb my experiences, and re-evaluate at that point. It felt like a defeat. It will always feel like a defeat.

My cat is scratching to the beat of Chop Suey by System of a Down. THAT was hilarious.

I think I introduced my cat to everyone 2 years ago when I got her, and I said I’d named her Andromeda. That was a lie. I have since named her Jazz. She likes Jazz music and is wild like Jazz can be, and smooth and calm like Jazz can be. Therefore, her name is Jazz and it will forever be Jazz. Here is Jazz now:

 

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She’s gotten much bigger
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This was her 2 years ago

Now she lays on her back and watches Television. ‘MERICAN Cat.

My posts are going to be haphazard like this until I get back into my writing groove. There is a groove, believe it or not, that writers get into. Some people are content with spewing the first thought from their head, and that is their groove. I do most of my deep thinking when I’m writing, so a lot of these thoughts are carefully calculated in my head as I type. Nothing is too spontaneous. I edit and edit and edit and take what I say very seriously, even when I’m joking about Ben Carson lying about his times at Yale. Carson could never be a good manipulator of the masses, he lies too blatantly. You have to lie subtly, with the intent to make the lie sound real. Nothing he said sounded real. I think he needs to operate on his own brain.

I will forever rip him, Trump, and Alex Gorskey a new one at any chance I get. One day I hope at least one of them will read some of the things I’ve said about them. I will be content on my death bed if that is the case.

Throwing Shade.

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Passion

I’m curious what you all think. I mean really lay it on me, tell me all of your thoughts and wishes. Tell me your self-hate speech and what that little voice is like inside of your head. Tell me your positive self speech and what that little voice is like inside of your head. Tell me if you don’t have one or don’t have the other. I’d like to know.

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I’d also like to know what you think about your therapist, briefly, sharing a struggle they’ve had in order to relate to something you’re saying. I know some people don’t like their professionals to “get personal” with them, but I’m curious why this is. I’m curious why you wouldn’t want someone who is there to help with your mental health prove to you that everyone struggles in one way or another at some point in their lives? I thought the whole point wasn’t to feel alone?

I salivate over the idea of mental health peers being counselors, therapists, psychiatrist, psychologists, people who really understand and can share their successes with you and how they got to where they are: that to me is inspiration, not a sign of a bad therapist. I don’t think they should sit there and tell you everything about their life, I don’t want to know about the star shaped mole on their husband’s nether regions, but telling me about a coping mechanism they’ve used for anxiety would be helpful.

Maybe this is just me. That’s why I’m sending it out to all of you, what’s left of you at least, since I’ve taken so many hiatus’ from this blog that I don’t know who actually reads me anymore or who doesn’t.

Since I will be giving a speech on peer supportive opportunities tomorrow, I’m in the spirit of talking about it.

How useful would it be that your therapist knew exactly what severe anxiety felt like.

How useful would it be that your psychiatrist remembers what their psychotic break was like.

How useful would it be that your counselor knew exactly how low your energy got during a depression because they’d been there before.

I think there’s a lot of compassion and empathy missing from the system sometimes, and I think a lot of that has to do with not really, truly, understanding what we go through. I think it also has to do with this “just do your job” mentality that happens from working a career too long–at least for some.

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I know there was a big difference between the physician’s assistant my dad saw in the emergency room versus the doctors that had been practicing for years. You could tell the P.A remembered all of his motivational interviewing skills. He knew how to connect, he knew how to negotiate, and he did it all with some serious humor. Maybe he’ll just be a great doctor one day. Or maybe it’s because he was new.

Somehow we have to keep that passion up. How should we do that? Should we, as patients, clients, residents, guests, members, whatever you refer to yourself as–should we start a ruckus? Should we remind our doctors why they became doctors in the first place?

Then there are the nice doctors who you do connect with who make simple mistakes. But it’s how they handle those simple mistakes that tells me whether or not they are decent at what they do.

For example, the nurse practitioner who handles my psychiatric medications (yes I am once again back on meds) told me that Abilify’s starting dose is 15mg.

It most certainly is not. How can it be if the first “therapeutic” dose is 10mg? I have yet to mention to her that the physician’s desk reference tells us that anything above 10mg hasn’t really shown any true efficacy in all the studies its been through, that will be a conversation for when she decides to try to take me to 15mg.

When I told her that I wanted to start at 5mg because my body is sensitive to this bullshit (I didn’t say bullshit, but I wanted to), she said oh, okay, we’ll do that–and didn’t argue with me. She trusted that I knew what was best for my body and I respect that. Not every psychiatrist or doctor will do that. Some of them pretend to know everything. Throw some Calculus at them, I bet they forgot how to do it. So they don’t know everything. Ha.

I think this also speaks to be able to speak up for yourself. It’s taken me a lot of years to learn that skill when it comes to doctors, because you want to trust what they have to say, you want to trust what they say is best for you, but the truth is only you know what’s best for you. Sometimes that means no medication, sometimes that means swallowing your pride and your arrogance and quelling your hatred for pharmaceutical systems and taking some form of medication until you can better handle yourself.

I don’t believe anyone is doomed to medication for eternity. Including myself. But I also recognize now that it’s an essential aide sometimes in life.

The point is, speak up for yourself. Don’t let someone, especially a professional, tell you that you don’t know yourself.

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