Progress and Advocacy

I didn’t think I’d make it to 23. I thought for sure I’d kill myself before then, or get possessed into damnation and die while the priest tried exercising the demon. After the Las Vegas shooter and the stint of psychosis and hospital visits that succeeded it I wasn’t sure what was going to come next. I certainly didn’t expect to move out of my parent’s apartment, start looking for a new car, a second job, and start school again.

I still remember the first day paranoia hit me like I’d never experienced. That was the day I learned the difference between anxiety and paranoia. I was no longer anxious, I was fearful, I was suspicious, and I was sold on the idea that those classmates were jealous of me and formulating a plan to get me kicked out of college. I was for sure they were reading my blog posts and wanting to shut that down as well. On top of that, I believed a coworker was invading my body and controlling my movements, intercepting my thoughts, and preventing me from speaking. I spend days sitting in front of my computer watching YouTube with the lights off and a blanket over my head. I couldn’t go out into the kitchen and get a damn bowl of cereal without feeling my movements weren’t my own.

That was almost two years ago to this date.

Then some conflict happened at work that made me question the trust I had in myself and trust I put in others. I had just begun trusting people for the first time in my life and when that was broken things spiraled quickly out of control. I was convinced the shooter was possessed by the same demons who were possessing my coworkers and they shot all those people as a warning to me. I started seeing women with their heads spinning around like the exorcist and hearing voices telling me to strangle my cat, telling me I was a “dead man walking” (even though I’m a woman) and making my footsteps echo like I was walking through the halls of hell. They showed me where I would be in hell through dreams, and tormented me in ways that would seem normal: nightmares, bad thoughts, e.t.c., things that don’t make me look “crazy” so they wouldn’t be caught. I’d see faceless people following me down the street at night.

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I can’t put these events in order because everything sort of blends together. I worked 4 or 5 days out of the week for two consecutive weeks and it broke me. I ended up back in the hospital and that’s where I received a diagnosis of Bipolar 1, on top of my past diagnoses of PTSD, Social Anxiety Disorder, Major Depression, and GAD. Out of the hospital, I received a revised diagnosis of Psychosis NOS: considering I’ve never had a stint in Mania in my life, it made sense from a professional standpoint.

I don’t tell what my diagnoses are not because I’m ashamed but because they don’t really matter. What matters is the experience, how I cope, and how others can cope. I don’t define myself or anyone by diagnosis, I don’t call them sick, I don’t call them “mentally ill”; in fact, I regard that as an insult.

If we want to reduce something like stigma we need to advocate for ourselves in a way that shows we are the same as everyone else, but with a different perspective on things in life. The brain is as unique as a finger print, I’ve said it many times on this blog, and that essentially crushes the idea of standard identity: no one is standard, there is no standard. There is only variety.

If we want people to take mental health seriously, we need to show them we aren’t dangerous, we aren’t crazy, we aren’t sick, we aren’t ill, we are strong, empowered people who struggle and are able to cope with that struggle in whatever way we can. We are people who have a lot of offer to this world, and perspectives to share with the world. We can work, we can live independently, we can choose to take medication or not and if you don’t believe me (even though I’m walking proof of that), please refer to Soteria house with Psychiatrist Loren Mosher and this post here.

And that’s today’s Mental Truth.

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Who’s In Your Driver’s Seat?

It feels good to be back. And by being back I mean reading articles that really have meaning to them, reading tweets that aren’t just about the memearific Kim K shoot. It feels good to be reading and reporting on articles that support and disapprove of my stance. I read one this morning called “The Corruption of Evidence Based Medicine–Killing for Profit” by a Doctor Jason Fung, a Nephrologist. You can read it here.

I mostly report on the corruption within the medicine of psychiatry, but the same happens in the sector of physical health.

This isn’t surprising. As I’ve said many times, medicine is a business. It shouldn’t be, but it is. It’s the same sort of business Tobacco is: it feeds off of people’s weaknesses. That’s not to say at least medicine has the quality of “helping” some people. Without my dad’s blood pressure medicine, his pressure rises into the 200’s easy. They’ve already seen he’s had a few mini strokes none of us knew about. So I’m not here to say we need to abolish the current system. I’m here saying we need to take a closer look.

It’s not your physicians necessarily that are in on this, it’s the researchers, the pharmaceutical companies, and if you live in the United States, the insurance companies. It’s a shame the only research that gets published is the research that very obviously supports the pharmaceutical or the procedure.

Fung quotes Doctor Marcia Angell when she stated the mean truth:

“It is simply no longer possible to believe much of the clinical research that is published, or to reply on the judgement of trusted physicians or authoritative medical guidelines. I take no pleasure in this conclusion, which I reached slowly and reluctantly over my two decades as an editor.”

It didn’t take me two decades to reach that conclusion, and I wasn’t reluctant about it. As soon as I read anti-psychotics were given to three year old’s for tantrums, I knew something was screwy. It doesn’t take a rocket scientists to see the profit within that.

Some psychiatrists and physicians aren’t even aware of what they’re doing half the time. My last psychiatrist wanted to raise me to 15mg of Abilify even though the research says anything about 10mg shows no real efficacy. And yet, how high up do they go in miligrams? 30. Think about that. 2mg of Abilify is 939 dollars a prescription without insurance. Abilify is one of the top-selling Antipsychotics in the U.S. Think about it. It took me digging through a lot of papers and research to even find the truth about the efficacy.

Soon all the rage will be these injections. The easiest way to trap someone on a medication is to give them one they can’t refuse. They are, of course, for the more “difficult” patients. So not only are you a patient with no rights, you’re also a patient with no rights who knows they have no rights, so you stand up to that, and that makes you difficult. Or, your experience of psychosis hasn’t been properly approached yet, and therefore you are left to sizzle in your own mind with only the fleeting hope an injection will change things. Maybe for some it does. But at what cost?

Fung makes a good point: “Evidence based medicine is completely worthless if the evidence base is false or corrupted.” 

Doctor Relman makes another good point:

“The medical profession is being bought by the pharmaceutical industry, not only in terms of the practice of medicine, but also in terms of teaching and research. The academic institutions of this country are allowing themselves to be the paid agents of the pharmaceutical industry. I think it’s disgraceful.”

It’s very disgraceful. This is why I have such a strong moral stance against taking medication, this is why I hate to admit that sometimes, yes, a low dosage of a medication does even out my mood. Yes, a low dosage of a medication does help me better understand and better dictate what thoughts I listen to and what thoughts I don’t.

It’s when doctors push up your milligrams because your voices haven’t gone that is the problem. Maybe the voices will never go away: if you haven’t accepted or made peace with that, that’s not a problem medication will solve. Maybe the delusional thoughts will always be there. The depression. The anxiety. If you haven’t accepted any of that, again, that’s not a problem medication will solve. 

It’s also not a problem to be solved. It’s an experience to learn from. It’s an experience to learn how to experience it in a way where you can still live the life you want to. Everyone has some kind of struggle that holds them back at some point in life. You are no different. And to sit back and say “Well, this is my ‘sickness’, I guess I’m doomed to a life of nothingness” is called giving up. That’s not acceptance.

That’s one thing that I struggle with in accepting this “mental health awareness” campaign everyone has going. They’re making awareness for the sickness, the illness, for this idea of helplessness because “your mental illness will never go away”. We should be empowering each other. We should be introducing each other to new perspectives, new ways of hearing voices, new ways of interpreting delusions, new ways of tackling anxiety, new ways of coping with depressions, new ways of experiencing mood swings. The only way we will avoid the corruption of ourselves is to keep ourselves. We can’t lose ourselves within this idea of being ill, of being sick, of needing this, needing that, being disabled.

And that’s today’s Mental Truth.

 

Mainstream Psychology & Psychiatry

Alright, let’s talk about this. Some of you probably already know my stance on psychology, psychiatry, and the way the system is set up. If you’re new to this blog, and haven’t been through the ringer with me, check out the quotes at the bottom of the home page and you’ll probably get the jist really quickly.

But there’s a trend on social media that I kind of want to address. It’s this cliche thing of naming what people like to call “mental illness”. I’ll use the term here because they do, but know I don’t believe in it, and never will I call myself mentally ill.

twitter_512I came across a Tweet (yes, I use twitter: @Ipenned) today stating “Social Anxiety disorder is not to be confused with introversion–which is true. It went on to state that people who are extroverted can also have social anxiety, which is certainly true. But then they had to ruin that truth with “Social Anxiety Disorder is a mental illness and can affect anyone”.

Why does that ruin the truth? Well, as someone who has struggled with social anxiety since I was a toddler (4 years old), and we’re talking severe social anxiety, I used to faint if I got called to the front of the class, and once spoke in tongues in front of a whole class because a substitute teacher called on me and my brain stopped working. I’ve made two whole friends in my life by myself. But as someone who has struggled with this, the last thing I want to be called is ill.

I’d rather be told I experience life differently. I’d rather be told not only is it okay to be anxious, but it’s okay to not need, want, or feel pressured to make or be involved in friendships. A lot of my anxiety abated when I went off on my own. Not because I’m some sick loner that needs to get my shit together, but because I actually enjoy time to myself, and the anxiety tires me out if I’m around people too long. That’s not a problem. That’s not something that’s wrong with me. That’s me. And if other people have a problem with it, that’s on them. They don’t have the right to call that part of me an illness.

I don’t consider my psychosis an illness. I interpret things differently, I think about things differently, my perspective is often through a lens of trauma, which becomes a lens of delusion, and once I was helped to understand that, a lot of clarity ensued.

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I don’t consider my depression an illness. I’ve been through a lot in my life, including homelessness, growing up around a lot of alcohol and drugs, domestic violence, violence–that changes the way you think, the way you see things, and the way you feel. Your neurons develop different connections. That’s not an illness. That’s an environmental change, an evolution. That’s called plasticity. Depression has opened up so much beauty in the world to me, I wouldn’t be as grateful, thankful, or happy as I am today without depression. And that’s not me glorifying the situation, that’s me finding the good in what everyone says is bad.

So it frustrates me when I see people on social media promoting this idea of illness. Why are you insulting yourself? Why are you feeding into the labels? I’m so confused.

I’m confused on why people think injections of medication is a good thing. I’m confused on why that’s not seen as a trap. I get that a lot of people have trouble taking their medication, I’m one of those people, but are once-monthly injections necessary? What if the person wishes to get off and their doctor doesn’t agree? Their power is taken away. And I understand that people really wholly believe their doctor knows what’s best for them. But I’m come across many psychiatrists who instead push their own agenda and don’t listen to a word I say. How is that knowing best? How is not listening to your “patient” knowing what’s best?

I guess I’m just confused in general. I’m sick of being seen as the enemy. I’m sick of people thinking that because I refuse to feed into the hype of pop psychology that I’m in denial of my own issues. If you want to consider yourself disordered and sick and ill and put all these negative connotations on yourself, and then turn around and say you’re not your illness, you go ahead and play around with it, try to make that logically sound. I, however, refuse to play into bullshit and refuse to play into the hype.

And that’s today’s Mental Truth.

The Crow Caws

So a recent hallucination of mine has been rather mild but annoying. It’s been a crow speaking to me, and shouting at me, particularly outside of my bedroom window. I also have a running theory that not only are ads following me on my phone and my computer, but they’re following me onto the televisions in the restaurants I’ve been visiting. But that’s a whole other conversation.

Anyway, this “hey” crow has the name “hey”, because that’s the way he gets my attention. Shouting “HEY. HEY. HEY. HEY. HEEEEEY. HEY.” until I acknowledge his presence. I haven’t seen him yet, but for some reason I know it’s a crow. It certainly isn’t a human. Maybe it’s a spirit calling from another realm, I haven’t given that much thought towards it because I knew for sure it was a crow: he always talks from outside up in a tree somewhere. It’s got to be a crow.

I do believe animals speak with us in their own language. I highly doubt they truly know English, but maybe this is a highly evolved crow who happens to have really gained a grasp on human form and language.

I wrote a quick poem about him. It goes something like this:

“Hey!” caws the crow, and I listen,

What wisdom

will he share today?

Will he show how a shadow dances with a mind of its own?

Or remind us how the sunrise ushers in a new spirit for the day?

 

“Hey!” caws the crow, and I listen

to whatever wisdom he shares with me today.

Will he warn me of the passerby–watch your back with that guy–or compliment

my outfit?

Will he watch the passing stars with me

and wonder about infinity?

There’s a lot this crow knows, you see.

 

And while I wonder what he’ll share

I have to remember

and be aware

that it may be fiction

what he wove into his diction

But “hey!” caws the crow,

and I still listen.

 

It’s impulsively penned, and certainly not great, but you get the jist of what I’m trying to say with it, I hope. Check out that poem and more writings on my Booksie account at this link here. 

 

Eloquence

So yesterday I was casually reading an article on schizophrenia and how the cortical thickness seen in the condition is directly related to duration and dosage of antipsychotic medication rather than the progression of a “disease”, and my cat started meowing. Nothing out of the ordinary really. A little spider scurried across the couch arm and I smashed it because I fucking hate spiders (sorry Buddhists, and sorry if there are any spiders from the spider dimension reading this, please don’t come and eat me) and I moved to the other side of the couch so that if there were any more spiders they wouldn’t come near me and I could see them coming. Again, nothing out of the ordinary.

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The only thing out of the ordinary is how content I felt with it all. My cat, the spider, the idea of a spider dimension, the article I was reading–well, I wasn’t really content with that, because that just pisses me off, but you get the point. I wasn’t happy, I wasn’t sad, I just was, and that’s a beautiful thing.

I was talking to someone about how uncomfortable being content has been for me lately, because I’m so used to feeling depressed or suspicious about something or other, sometimes about nothing at all. Sometimes I’ll just sit in a depressed, suspicious heap and not understand an ounce where it’s coming from. But lately, besides crippling anxiety, I’ve felt okay. I’ve been pouring my heart out into some poetry, which is something I’ve never really done before, and I’m considering grouping them all together into a collection. I’ve personally never liked poetry, or written a lot of it, but lately I’ve realized how similar it is to writing a story, only the language and metaphors and similes are done in an equally beautiful way.

I’ve also started comparing psychosis, mine at least, to poetry. And I’ll explain that at a later date, as soon as I figure out exactly how to do that.

I think I wrote in a different post about contentment, but there was a lack of feeling in it because I hadn’t got into my groove yet. Now I’m back in my groove and finding my voice again, so I can talk fucking eloquently about my experiences. Are you ready, kids?

Fuck depression.

That’s eloquent, right?

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I don’t know if my psychosis is related to my depression, it very well could be, but it seems to be more consistent across the board than the depression, so it might not be. We’ll see what the psychiatrist says on our next visit: I would like her to tell me what she’s diagnosing me with, besides PTSD which was already established. I don’t want to have to sneak a look on her computer like I had to with the county psychiatrist. Did I tell you all about that? She wouldn’t tell me shit, so when she left the room I sat in her chair and read all the notes she wrote about me, from the “denial” of substance use, to the “ruling out” of schizophrenia. If you’re wondering how I didn’t get caught, it’s because she was wearing heels and walking back and forth across tile. I knew when she was leaving and when she was coming back. She had diagnosed me with Psychosis NOS and Depression and GAD. My current psychiatrist has since wiped that all off the table and added PTSD as a for-sure diagnosis.

And this is why I am not someone who advocates that people need to be diagnosed. It’s just a bunch of back and forth malarkey. Everything overlaps each other so frequently there’s no telling if what you’ve been diagnosed with is even accurate. So you end up with a list of diagnoses and a list of medications and you’re wondering who you are, why you’re so fucked up, and yada, yada. Why go through all that trouble? Why not just be told you’re struggling and these are a list of options to help you through that struggle?

Seems a lot easier and less damaging to me.

I also recognize that for some people a diagnosis really does solidify things for them.

And if that’s the case for you, be proud of it and own it.

You’re unique.

 

 

Finally.

I think I pinpointed one of my major problems today.

As I was driving home, listening to SAD by XXXTentaction for whatever reason (shut up), one of his lines caught my attention. It goes:

maxresdefault“Who am I?”

“Someone that’s afraid to let go” (Should be WHO’S afraid to let go, but I let him slip since he got shot and killed)

“You decide”

“If you ever gunna let me know”

“Suicide”

“If you ever try to let go”

“I’m sad I know, yeah, I’m sad I know yeah.”

Not the deepest lyrics in the world, but to me they hit a chord, particularly the “I’m sad, I know yeah” portion. I think denial has been an issue of mine for a long time now. Through the entire three years that I’ve been blogging on this account, I don’t think I’ve ever mentioned this. And it’s hard to write about something I haven’t already mentioned on this fucking blog.

But I think I denied how “Sad” I really was for some years now. I played it off so well that I convinced myself nothing was going on. So when I got extremely low, I broke. Then I repaired myself, denied it ever happened, and waited until the next break. I think that’s where portions of my psychosis comes from.

Which is another weird thing to say: “my psychosis”.

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For a long time I denied that as well. And it wasn’t always just because I actually believed the delusions and such. It was also because I just didn’t think there was anything wrong with me. Regardless of the thoughts or any voices, I just didn’t think anything was wrong. I was suffering, and refused to believe anything was going on. I don’t understand how a brain can do that. I just don’t. I don’t because I was aware of everything so vividly. And yet I was so distant from it all.

It feels vindicating to say those few words “I’m sad I know yeah, I’m sad I know yeah”.

I also think I denied the psychosis because it wasn’t “as bad” as other people. I didn’t end up involuntary because of paranoia until I threatened to kill myself over it, so it’s not like I was found running naked down the street screaming about aliens. No, I kept my naked, screaming self hidden within the back of my mind and suffered that way. If there’s no such thing as a quiet psychosis, I’ve just invented it.

I’ve invented quiet everything, trust me. Quiet rage, quiet happiness, quiet sadness, quiet psychosis, it’s copyright. Don’t steal it. The only exception is “quiet borderline” which is already a thing so I can’t steal it. Fuck whoever coined that term. That’s MY term.

I feel like I’m starting to get back into this writing groove. This is nice.

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Anyway, my point is I feel like I’m getting my brain back, my motivation, my determination, and my passion. I also feel like I’ve learned so much about myself over these last three years that I’m really thankful for every bit of the experience, even the times that have been roughest I’ve ever been through.

It’s been the first time I’ve spoken in therapy about my delusions. I call them that, but at the same time I still kind of believe them. So I don’t really know how to deal with that. I guess I can say that everyone else calls them delusions, I just call them reality. But regardless, I’m talking about them, and it feels good to have a therapist who isn’t judging what I’m saying. She may talk like a speed demon, but her words are valid and kind. So far.

I’ve also been recognizing when my perception of others is getting in the way of me seeing their true self. That’s a whole other can of worms to open.

I think that’s enough for now.

Own up to what you deal with. You don’t have to believe you’re crazy. You don’t have to believe you’re delusional or psychotic or any of those things. Just know you’re struggling, and start to get okay with that, or you’ll never be okay with it. And that’s today’s mental truth.

Reaching Contentment

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Where are you in your journey?

I feel like I spent a lot of time confused. If any of you are reading from the past, you’ll remember all the posts I made while I was in classes, about annoying girls flipping their hair right in my face and Calculus tests and writing workshops. You might even remember that I started dropping classes like flies. Now I’m trying to work on getting back into my classes so I can finish this puny fucking degree.

I’ve always liked school, and I’ve always been rather smart. There were some things I had to work at harder than others, but a lot of that was chalked up to my anxiety and inability to raise my hand and ask for clarification when I needed it–everyone needs clarification sometimes, I don’t care how smart you are. And if you are unable to get that small little aide, you start falling behind. And that’s exactly what I did. That’s exactly what I’m still doing.

Where am I in my journey–I’m not quite sure. I still feel a little lost and a little confused, but I feel like the directions are becoming clearer. I feel like I’m not longer standing at a fifty pronged fork in the road, I feel like I’ve narrowed it down to about 4 prongs.

I will be attending some classes again this semester, but I feel more ready for them, more so than I have in the last couple years. It’s going to feel a little strange being back in the classroom and as I watch my cat jump atop the fridge to get atop the kitchen cabinets, I realize that I have to do the same thing she does: calculate how far I can really leap, and what my limits are. I can’t just be jumping aimlessly. I need to jump with a purpose. That’s the only way to keep what little motivation I have left steady.

Life is such a great learning experience, I’ve learned to appreciate so much over the last three years. I’ve learned to appreciate myself most of all, and the shit I’ve put up with.

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I think what has made this experience one of the best experiences is that I’ve really learned how to feel my feelings. I was talking the other day with someone about how content I was, and how that feeling has been harder to learn to accept than the negative emotions. I don’t know what to do with myself when I’m content. I don’t have to fight with my brain, I don’t have to practice breathing because I’m not anxious, I’m not hearing voices or seeing demons, I’m not suicidal, I’m just kind of sitting in my house content with where I am in the moment. And that’s a new feeling. As with all new feelings, they take some time getting used to.

My intention was to pinpoint ways to become content like this, but I’m not sure if I can put it into steps or even words. I’m still expanding my support force, both with peers and in the professional world, and I’ve dropped a lot of pride. I’m still morally against taking psychiatric medication, but I came to the realization that as a temporary tool they can be useful. I’ve decided to give it a year or two, see how much progress I can make, see what skills I can learn to curb my experiences, and re-evaluate at that point. It felt like a defeat. It will always feel like a defeat.

My cat is scratching to the beat of Chop Suey by System of a Down. THAT was hilarious.

I think I introduced my cat to everyone 2 years ago when I got her, and I said I’d named her Andromeda. That was a lie. I have since named her Jazz. She likes Jazz music and is wild like Jazz can be, and smooth and calm like Jazz can be. Therefore, her name is Jazz and it will forever be Jazz. Here is Jazz now:

 

Jazz Photo
She’s gotten much bigger
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This was her 2 years ago

Now she lays on her back and watches Television. ‘MERICAN Cat.

My posts are going to be haphazard like this until I get back into my writing groove. There is a groove, believe it or not, that writers get into. Some people are content with spewing the first thought from their head, and that is their groove. I do most of my deep thinking when I’m writing, so a lot of these thoughts are carefully calculated in my head as I type. Nothing is too spontaneous. I edit and edit and edit and take what I say very seriously, even when I’m joking about Ben Carson lying about his times at Yale. Carson could never be a good manipulator of the masses, he lies too blatantly. You have to lie subtly, with the intent to make the lie sound real. Nothing he said sounded real. I think he needs to operate on his own brain.

I will forever rip him, Trump, and Alex Gorskey a new one at any chance I get. One day I hope at least one of them will read some of the things I’ve said about them. I will be content on my death bed if that is the case.

Throwing Shade.

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To Recover or Not To Recover, That Is The Question

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What do you all think about the word ‘recovery’ in terms of mental health issues? I’ve been thinking about this recently, trying to come up with my own definition and I came to realize I just may not identify with the term at all.

I don’t know if recovery is a good word to describe what we all go through to come out on the other side of things. I believe that every second of our lives living with this is something that requires us to go beyond recovery. Because once we’re in that “recovery” stage, for most of us things don’t go away, we’re just better equipped at dealing with things.

I know for me, I feel as if I’m finally coming out of a fog. That fog was devastating and has lasted almost three years. I did a lot of ridiculous things because of my paranoia and my mood swings, including dropping a lot of classes, losing some jobs, risking the one job I still do have, and was unable to connect with proper support. I went on and off medication, and documented most of that descent on this blog. I even bought this website domain and hoped to turn this into something greater, but failed because depression ruined my passion. Slowly, I’m getting that back.

Is this “recovery”, though? I don’t think so. I’m not recovering from anything, I’m just learning how to better cope with my emotions, how to better feel them and how to better manage them. That to me is a journey. I’m on the other end of my journey, it feels like, and maybe one day I’ll return to that fog with better equipment to put up with it all. I don’t know. So to say that someone struggling with mental health issues is in recovery almost sets them up for failure–if they return to that previous state of mind, what does that mean? That they’re not in recovery anymore? To me, that doesn’t make sense. To me, it’s just another hiccup in their journey.

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Word choice is very specific in the world of mental health. If you walk up to someone who identifies with the label of schizophrenia and call them “a schizophrenic”, a lot of those people would correct you, that they are someone “with” schizophrenia, that they are not defined by their condition. Which is great for them, whatever creates a sense of control over what they deal with. Some people also hate the term “committed suicide”, a lot of them prefer to say that their loved one died from depression or whatever drove them to take action.

The only word choice I have issues with is if someone refers to themselves or other people as “mentally ill” or “mentally diseased”. I’ve done plenty of posts on why I believe those terms should be erased from our vocabulary. In case you weren’t there when I was ranting about that, or don’t remember my rants on it, I’ll give a quick summary:

I choose not to believe my problems are illnesses, I choose to believe they are a result of my dealing with emotions in a different way than others. If I’m hearing voices, it’s not because of some degradation of my brain, it’s because there’s a level of stress I’m reaching that I’m not tending to. If my moods are swinging out of control, it’s not just some biological imbalance, it’s my reaction to life and whatever is going on at the moment, whether that be something good or bad. I choose to see myself as gifted, and I’m thankful to the nurses in the hospitals who had also had that viewpoint. It made my stay a lot more comfortable.

There’s also no real viable research that mental health issues are diseases since all of the brain matter studies they have done have been on people who have taken psychiatric medication, and that changes the brain structure, that’s something that’s been known for years. So:

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That’s my reasoning.

But otherwise, I don’t care what you call me. I don’t even have a steady diagnosis. So call me a Bipolar, I don’t really care. Call me a depressed freak, I don’t care. You can even call me a schizophrenic, but you’d be mistaken–either way, I don’t care. Because what someone calls me holds absolutely no weight on how I see myself or how I see others. Just like the debate years ago over changing the term schizophrenia to something else, to “remove stigma”. The stigma isn’t attached to the word, it’s attached to people’s perspective of the mental health struggle. Change the word all you want, it’s not going to make a difference.

So when I think about the word recovery, I guess it’s kind of the same thing. Whether you’re recovering or coping depends upon your perspective of your own mental health. That makes sense.

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Passion

I’m curious what you all think. I mean really lay it on me, tell me all of your thoughts and wishes. Tell me your self-hate speech and what that little voice is like inside of your head. Tell me your positive self speech and what that little voice is like inside of your head. Tell me if you don’t have one or don’t have the other. I’d like to know.

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I’d also like to know what you think about your therapist, briefly, sharing a struggle they’ve had in order to relate to something you’re saying. I know some people don’t like their professionals to “get personal” with them, but I’m curious why this is. I’m curious why you wouldn’t want someone who is there to help with your mental health prove to you that everyone struggles in one way or another at some point in their lives? I thought the whole point wasn’t to feel alone?

I salivate over the idea of mental health peers being counselors, therapists, psychiatrist, psychologists, people who really understand and can share their successes with you and how they got to where they are: that to me is inspiration, not a sign of a bad therapist. I don’t think they should sit there and tell you everything about their life, I don’t want to know about the star shaped mole on their husband’s nether regions, but telling me about a coping mechanism they’ve used for anxiety would be helpful.

Maybe this is just me. That’s why I’m sending it out to all of you, what’s left of you at least, since I’ve taken so many hiatus’ from this blog that I don’t know who actually reads me anymore or who doesn’t.

Since I will be giving a speech on peer supportive opportunities tomorrow, I’m in the spirit of talking about it.

How useful would it be that your therapist knew exactly what severe anxiety felt like.

How useful would it be that your psychiatrist remembers what their psychotic break was like.

How useful would it be that your counselor knew exactly how low your energy got during a depression because they’d been there before.

I think there’s a lot of compassion and empathy missing from the system sometimes, and I think a lot of that has to do with not really, truly, understanding what we go through. I think it also has to do with this “just do your job” mentality that happens from working a career too long–at least for some.

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I know there was a big difference between the physician’s assistant my dad saw in the emergency room versus the doctors that had been practicing for years. You could tell the P.A remembered all of his motivational interviewing skills. He knew how to connect, he knew how to negotiate, and he did it all with some serious humor. Maybe he’ll just be a great doctor one day. Or maybe it’s because he was new.

Somehow we have to keep that passion up. How should we do that? Should we, as patients, clients, residents, guests, members, whatever you refer to yourself as–should we start a ruckus? Should we remind our doctors why they became doctors in the first place?

Then there are the nice doctors who you do connect with who make simple mistakes. But it’s how they handle those simple mistakes that tells me whether or not they are decent at what they do.

For example, the nurse practitioner who handles my psychiatric medications (yes I am once again back on meds) told me that Abilify’s starting dose is 15mg.

It most certainly is not. How can it be if the first “therapeutic” dose is 10mg? I have yet to mention to her that the physician’s desk reference tells us that anything above 10mg hasn’t really shown any true efficacy in all the studies its been through, that will be a conversation for when she decides to try to take me to 15mg.

When I told her that I wanted to start at 5mg because my body is sensitive to this bullshit (I didn’t say bullshit, but I wanted to), she said oh, okay, we’ll do that–and didn’t argue with me. She trusted that I knew what was best for my body and I respect that. Not every psychiatrist or doctor will do that. Some of them pretend to know everything. Throw some Calculus at them, I bet they forgot how to do it. So they don’t know everything. Ha.

I think this also speaks to be able to speak up for yourself. It’s taken me a lot of years to learn that skill when it comes to doctors, because you want to trust what they have to say, you want to trust what they say is best for you, but the truth is only you know what’s best for you. Sometimes that means no medication, sometimes that means swallowing your pride and your arrogance and quelling your hatred for pharmaceutical systems and taking some form of medication until you can better handle yourself.

I don’t believe anyone is doomed to medication for eternity. Including myself. But I also recognize now that it’s an essential aide sometimes in life.

The point is, speak up for yourself. Don’t let someone, especially a professional, tell you that you don’t know yourself.

tipoftheday

Kanye, Toss Me 50 Mill, Let’s Change The World Together

d39146bc8bc845478890583accb3f0bf*Ahem*

I’ve been writing on this blog since July 2015, periodically at best, fragmented at best, turned it into a domain I could own, lost the domain because I couldn’t afford it, and now here I am, back to square one, reintroducing myself to the world of rants, vents, and sarcastic musings.

I realized how good of an outlet this place is, and I miss the interactions between new people, old people, and people in general. Fuck building an empire, fuck pleasing people, and fuck everything, in general. I think that’s a good way to start off this post.

In reading back a lot of my old posts, I laughed at my own jokes, humored myself with my own sarcasm, and cherished my vulnerable moments: essentially it was a huge ego trip. Isn’t that wonderful? How conceited can I sound? I could probably be worse if I tried. But what’s life without having a bit of an inflated self-esteem? What’s life without trying to convince the world you’re a god among men? Kanye knows what I’m talking about, right? No? No one? Okay.

Love Kanye. What he say in his new song, Yikes?

“Shit could get/menacing/frightening/find help/ sometimes / I scare/ myself.”

And

“I can feel the spirits all around me/ I think Prince and Mike is trynna to warn me/ they know they got demons all on me/ devil been trynna make an army/ they been strategizing to harm me/ they don’t know they dealin with a zombie. ”

I resonate with that on a spiritual level. That’s not sarcasm.

And, of course, the most influential line of his musical career:

“Scoopity Whoop.”

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That song took me to higher levels of consciousness. I sat at the computer listening to Lift Yourself, nodding to an average beat, but that next verse? That NEXT VERSE THOUGH? Damn, I just didn’t really realize, I guess. I don’t think I’ll ever find another set of bars that chills my veins like “Poopity Scoop, scoopty whoopty poop”. Or, whatever.

In 2015 I was twenty years old, barely out of the terrible teens, and in 7 days I will be twenty three, still barely out of the terrible teens I guess, and in my own apartment free of the reign of terror that has been my parents’ apartment. I have good memories and bad memories. The good memories are pretty good, the bad memories are pretty bad. Read previous posts for more info. I’ve basically put the last three to four years of my life in a chronological order on this blog.

I remember writing a post about my predictions for the 2016 election, and how if that base head neurosurgeon Ben Carson dropped out of the race, Trump would win. Well, what happened? Without Ben there to cancel out Trump’s stupidity with his own, nothing could stop Trump. Don’t agree with me? No one’s asking you to, but I basically predicted the future, so . . .

Now what I’m trying to predict is when I will find a competent psychiatrist. I’ve sort of come to the conclusion that it’s impossible. I had a good two months with a county-funded psychiatrist who listened to what I said and, for the first time in my life, found a set of medications that worked well with me, but when they kicked me out of the Mental Health building K because I didn’t want to actively kill myself anymore, because I still had a job, I got stuck with a regular county psychiatrist who, when I told her I’d stopped hearing voices, told me I was lying and sent out a prescription for a higher dose of my medication.

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If you’re wondering, I stopped seeing her.

If you’re reading this and are really confused, I’d suggest reading through a couple previous posts. I would also like to remind my audience that not everyone who hears voices hears them all the time, and not everyone who hears voices has/or identifies with schizophrenia–two common misconceptions. And not everyone with schizophrenia hears voices.

The fucking point is, if I tell you I’m not hearing voices, I’m not hearing voices. If I tell you I’m not seeing shit, I’m not seeing shit. If you don’t believe me, go to the back room, take your head out of your ass, and breathe the fresh air of reality, because you’ve been missing from it for too long.

If I don’t want my medication dosage raised, don’t fucking raise it. 

Now, here’s the tricky thing. In leaving that shitty psychiatrist and stopping all my medication, I not only put myself through some serious mental hell, I also lost the ability to find a psychiatrist or therapist at all.

*For global readers, insurance is what the United States scams it’s citizens with to get more money.*

With my propensity to freeze up talking to doctors, psychiatrists, and therapists, I often get help calling for new appointments because the anxiety paralyzes me. So I’ve pushed my family to help me call. We’ve been calling for two months now.

One psychiatrist has gotten back to us, after a week of him leaving voicemails, us leaving voicemails, and both of us missing each other. He asks how old I am, and what’s going on with me. My mother takes the call, and explains what I’ve described, and he suddenly has too many patients.

Liar rubber stamp. Part of a series of stamp concepts.

Every other mental health professional we’ve called and who has called us back and left a voicemail always, always said “I’m sorry, I’ve got too many patients right now” without needing to know any information about me.

This motherfucker said that after he learned what I was going through. What does that make me think? That he can’t take on a challenge. And, if that’s the case, at least have the balls to tell it to my face. Tell me you don’t want to deal with me. Tell me you can’t handle it. If you can’t admit that, fuck you, you’re a coward.

And most importantly, don’t ever waste my fucking time again.

If you’re wondering, most recently I’ve breezed through 5 new diagnoses (not counting the ones I had as a teenager) after seeing 4 psychiatrists and a few therapists since December 2017 (six months total) , and I only found out the most recent one because I sat in my psychiatrist’s seat and read her notes on her computer while she went to go talk to a colleague. If they won’t tell you what they write, read it yourself–a tip for anyone new to the mental health system. Just don’t get caught.

The diagnoses have been: GAD, PTSD, Depression, Bipolar 1, Psychosis NOS from oldest to newest.

Some psychiatrists haven’t agreed with the PTSD–how is that something to refute, anyway? They ruled out schizophrenia and depression with psychotic features. The psychiatrists in the hospital were bent on Bipolar 1 even though I’ve never been manic in my life, the one I saw immediately after my hospitalization wasn’t sure at all what I was dealing with (finally, an honest fucking response). The last one is hell bent on psychosis NOS. They all agree on the depression and the anxiety.

So, what have I learned over these last six months besides the fact that if I’m not actively suicidal and/or psychotic I won’t be taken seriously as a candidate for steam-lined mental health care? Other than, if I’m still working I don’t actually need any real help?

Absolutely nothing.

If I didn’t love my job, I would have quit just to add the dramatics they obviously want.

I welcome myself back into the blogsphere.