Truths

The Treatment of Us

Opportunities are often snatched from chaos. They don’t drift by idly. They come as a result of coincidence often, of hard work, of belief. Sometimes they come to you because they were meant to come to you. Never leave any stone un-turned.

I’ve been amazed this past few months where much of my writing has taken me. It’s increasingly won scholarships and the recognition of professors, professionals, and magazines. Much of what I write about surrounds mental health, as you all know, and because of that I’ve run into many road blocks.

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I started a blog as a journal. As I found my voice I realized, as the comments rolled in, that my ideas surrounding mental health aren’t typical. I realized that peer support wasn’t something many could put as much faith into as I. I realized that medication and pharmaceutical companies were things many consumers of mental health were things they saw as requirement rather than option–and I completely respected that. I myself have been on and off medication, and as of now I’m on medication again. There’s nothing shameful about that.

What has bothered me is the lack of choice people realize they have. What has bothered me the most is the cold shoulder I’ve been given by many fellow consumers. And while I absolutely respect their point of view, as I at one point believed the same, I can’t help but grow frustrated that those mental health writers in complete support of the medical model, of the ideals that mental disorders are 100% a chemical balance, that we are people who are “ill” and “sick”, get more of a voice out to the mental health community than those of us spreading a different message.

I grow frustrated that my ideas and I are treated as an outcast because we’re not preaching subservience to the portion of mental health treatment run by corporations, by money, and by greed.

What is interesting is that the evidence is very, very clear. Peer programs, when they first began, showed extreme promise. The idea was created for people experiencing “first break” psychosis. It eventually developed into something to aide those with a schizophrenia diagnosis to stay out of psychiatric hospitals, to live independently, and to learn how to cope with experiences like voices. Upwards of 70% (or more), after they went through the peer programs and moved on in their life never fell into the hands of a psychiatric hospital again. Some never needed psychiatric medication again.

Let’s compare that to recent pharmaceutical research, where maybe 174 people in a clinical trial lasting six weeks meant to represent the entirety of a population that would be taking a medication for possibly years, found that there was hardly a significant difference between the placebo pill, an older medication, and the new medication. Those findings are tossed off somewhere in the research lab while the company developing the pill tells the researchers to advertise the drug towards a specific population and say it helps with a specific problem.

The paper is published in a scientific journal without the reject papers. That, my friends, is against the law and the code of honor of research.

And when those reject papers are found and wrote about (there are articles about it across the internet), not many hear about it because the companies settle out of court and get off with a slap on the wrist.

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Everything about mental health consumers, our health, and our livelihood is done without us. So if that’s the kind of care you want to promote on your websites, if that’s the kind of care you want to promote as a mental health writer, go right ahead. I’m not afraid to let go of a writing position or a chance to do a guest article if I’m required to mold to something I don’t believe in.

When I first acquired my peer support position and was dazzled by what I saw, I searched the internet for information. I found several articles about similar programs, and was astounded at the difference and impact respites and peer programs have done–things you never hear about unless you search for it. Things not published on websites who claim to give all kinds of information on mental health and different treatments.

One writer said, as a respect to peer programs:

Dream Two? When all people are able to set aside their need to label and diagnose another human being in order to understand “what’s wrong,” and instead sit at a kitchen table to find out “what happened,” and share stories. This is my dream of what “mental health” will look like one day.

–Yana Jacobs

Written by a woman who is the Senior program officer with the Foundation for Excellence in Mental Health Care.

Like it or not, change is coming. You can hold on to the old models all you like. You can feed into bullshit all you want. I personally don’t care what medication someone takes. I don’t care what their diagnosis is. I don’t care how many times they’ve been hospitalized. All I care about is who they are as a human being. I care about their story, where they came from, what they’ve been through. I care about what they have to say and how they express it.

You could write countless “list articles” about steps to “recovery”, or why you’re still “sick” on your medication. You can advocate compliance with the old system all you want. But you’re only perpetuating the idea that we’re all at the mercy of our “illness”, even when you’re trying to put out the most positive message you can. 

I’ve been blessed to have a lot of writing opportunities coming my way. Thank you, Thought Catalog. Thank you to my professor who ran after me in the rain to talk to me about my writing. Thank you to my blog followers who’ve kept me going for over a year now. Thank you to the people who’ve asked me to write an article for their websites. Thank you to the people who email me and ask me questions about all of this. Thank You IPS. Thank you to Second Story Peer Respite for showing me all you have, because without them none of this would be a reality right now.

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And thank you, most of all, to everyone who thinks I’m absolutely insane. You’re pushing me to fight harder to get this message known.

About AlishiaDee (372 Articles)
Alishia D. is a blogger, a beginning novelist, and a counselor at 2nd Story Peer Respite house where diagnostic labels and the culture of mental health is long forgotten. She's a mental health peer who has bounced through as many labels as she has doctors, and enjoys being sarcastic when she can. She also hates writing in 3rd person.

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